Register for our newsletter
Menu

Subscribe to The Parliament

Subscribe now
Subscribe now
Search

Follow us:

We are excited to share the third edition of our Rare Disease Day special edition "Rare Diseases: Finding solutions together for Europe". You will find contributions from across the political and rare diseases spectrum, including Sandra Gallina, Director general of DG Sante, MEP's Tilly Metz and Tomislav Sokol, EESC President Oliver Röpke and more.

Featured Articles
Stronger together: Fighting rare diseases requires collaboration Partner Content
29 Feb EU Institutions
Stronger together: Fighting rare diseases requires collaboration
To address the unique needs of affected individuals and improve patients lives, a multifaceted approach involving all stakeholders is needed
Advancing innovation for rare disease patients: a call to action on Rare Disease Day 2024 Partner Content
29 Feb
Advancing innovation for rare disease patients: a call to action on Rare Disease Day 2024
Now is a pivotal moment to put rare diseases at the heart of both policy and elections to ensure that no patient is left behind
A holistic, realistic approach to OMP reform and action Partner Content
28 Feb
A holistic, realistic approach to OMP reform and action
The fate of the rare diseases ecosystem hangs in the balance. Our actions going forwards could have significant implications for the future of the patient community
Substantial action is needed to support rare disease patients Partner Content
27 Feb EU Institutions
Substantial action is needed to support rare disease patients
The EESC’s recent own-initiative report highlights the next steps required to improve the lives of rare disease patients, including actualising legislative framework, optimising policy and harnessing technological innovations
'Rare' should not mean 'alone' Partner Content
27 Feb EU Institutions
"Rare" should not mean "alone"
The EESC, together with associations of patients, researchers and practitioners, asks the European Commission for an action plan to on rare diseases
#ActRare2024: How the EU elections can help tackle rare diseases Partner Content
26 Feb
#ActRare2024: How the EU elections can help tackle rare diseases
The fate of more than 30 million Europeans living with rare diseases hinges on the outcomes of the upcoming elections. Policymakers must use this moment to build a more inclusive future for all EU citizens, including the most vulnerable
Empowering innovation: The future of rare disease therapies in Europe Partner Content
23 Feb Technology
Empowering innovation: The future of rare disease therapies in Europe
With biotech companies playing a pivotal role in finding therapies for people living with rare diseases, Europe has the potential to lead the charge in revolutionising new treatments
Seizing opportunities for rare disease patients Partner Content
22 Feb EU Institutions
Seizing opportunities for rare disease patients
As the end of the Parliamentary term approaches, it’s time to proactively push for improvements in the lives of people living with rare diseases
Imagining a future where rare diseases patients have a better chance at a healthy life Partner Content
21 Feb
Imagining a future where rare diseases patients have a better chance at a healthy life
Past legislation has inspired impressive medicines development in Europe and we must continue to drive progress to deliver new, life-changing therapies
Breaking barriers: The European Commission’s commitment to tackling rare diseases Partner Content
20 Feb EU Institutions
Breaking barriers: The European Commission’s commitment to tackling rare diseases
When tackling rare diseases, the added value of EU action is undisputable. The Commission must prioritise continuing to support improvements in the field
Rare Diseases: Finding solutions together for Europe Partner Content
18 Feb
Rare Diseases: Finding solutions together for Europe
The Parliament's special supplement "Rare Diseases: Finding solutions together for Europe" in partnership with Takeda is now available to read online
Supported by

This supplement was created in partnership with Takeda.